The ASCO Post: Realizing the Full Potential of Patient Engagement in Clinical Research
In this powerful reflection, patient advocate Beverly Canin shares her journey from breast cancer patient to research partner, emphasizing the importance of meaningful patient engagement in clinical research. The article highlights the development and impact of SCOREboard (Stakeholders for Care in Oncology and Research for Our Elders), a successful model of patient engagement that originated from the COACH study led by Dr. Supriya Mohile and supported by CARG. SCOREboard has evolved through multiple initiatives, including the CARinG project and the GOTO clinical trials, ensuring patient voices are central to research design, implementation, and dissemination.
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Key takeaways include the importance of early engagement, clear role definition, and sustained infrastructure to support patient involvement. The piece also calls on funders to recognize and invest in models like SCOREboard that connect engagement to meaningful outcomes.
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Quote Highlight:
“Nothing about us without us is a centuries-old value that is a cornerstone of meaningful patient engagement in clinical research.” – Beverly Canin
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Last Updated on September 5, 2025